Study evaluating transfusion dependent β-thalassemia patient preferences in Greece
PATIENT PREFERENCE STUDY
The goal of the patient preference study was to assess patient preferences for care delivery and therapeutic options in transfusion dependent b-thalassaemia.
We worked with b-thalassaemia patient groups to develop a questionnaire to assess current physical and psychological status, transfusion burden and trade offs for therapeutic options.
Results
We produced a detailed report on factors that impact on patient preferences to inform health policy and planning decision making and determine how likely are β-thalassemia patients in Greece to opt for a novel treatment to reduce their blood transfusion burden, depending on size of burden and with what trade off.
Time burden due to blood transfusion
Additional novel treatment scenario
Blood transfusion
Cost of blood transfusions
Evaluating access to health services of people living with HIV in Greece
PATIENT ACCESS EVALUATION STUDY WITH HIV PATIENTS IN GREECE
The goal of the study was to map access to and satisfaction with health care services of people living with HIV in Greece.
We conducted an online survey with members of the HIV patient association “Thetiki Foni” to map barriers in access to care, including waiting times, distance from the point of care, cost of services and stigma.
Results
A report was created which highlighted the shortcomings in access to care due to geographic and financial disparities together with gaps in the organizational and operational effectiveness of the healthcare system.
The report was presented in a virtual conference with multi-stakeholder participation, organised by the HPI.
The percentage of HIV patients
The number of HIV patients
Hope V Study: Assessment of Living Conditions and Access to Health Services for People who Live with Hepatitis C in Greece
PATIENT ACCESS EVALUATION STUDY WITH HEP C PATIENTS IN GREECE
The goal of the hope V study was to map living and access to care conditions of Hepatitis C patients underline barriers and challenges for reform.
We developed and validated a customized tool to assess barriers in access to care, according to a number of criteria such as: personal, financial and systemic.
Results
A series of scientific publications and conference presentations of survey outcomes in the area of hepatitis
Barriers to the access in medical care
Not fulfilling the criteria
Barriers to therapy access in general
Failure to receive treatment
Investigating the role of psychiatrists and neurologists in the primary healthcare system in Greece
HEALTH POLICY PLANNING SURVEY TO EVALUATE A PROPOSED HEALTHCARE SYSTEM REFORM
The goal of the study was to understand challenges of the proposed primary health care reform in Greece and their impact on mental health care, from the perspective of both patients and physicians.
We conducted a survey via email with 174 psychiatrists and psychiatrist residents. The study was carried out between March and June 2015.
Results
Evidence were presented for the inclusion of mental health specialists and the integration of specialized care delivery into the proposed primary care reform