Case Studies

Study evaluating transfusion dependent β-thalassemia patient preferences in Greece

PATIENT PREFERENCE STUDY

The goal of the patient preference study was to assess patient preferences for care delivery and therapeutic options in transfusion dependent b-thalassaemia.

We worked with b-thalassaemia patient groups to develop a questionnaire to assess current physical and psychological status, transfusion burden and trade offs for therapeutic options.

Results

We produced a detailed report on factors that impact on patient preferences to inform health policy and planning decision making and determine how likely are β-thalassemia patients in Greece to opt for a novel treatment to reduce their blood transfusion burden, depending on size of burden and with what trade off.

Time burden due to blood transfusion
The number of b-thalassemia patients in Greece who experience 3+ hrs time burden on the day of blood transfusion
0%
Additional novel treatment scenario
The number of b-thalassemia patients who would opt for an additional novel treatment scenario, accepting the risk of potentially experiencing additional side effects
0%
Blood transfusion
The number of b-thalassemia patients in Greece who receive a blood transfusion once every 15 days
0%
Cost of blood transfusions
The number of b-thalassemia patients in Greece who report to spend €50 or more on a monthly basis as a result of their blood transfusions
0%
Evaluating access to health services of people living with HIV in Greece

PATIENT ACCESS EVALUATION STUDY WITH HIV PATIENTS IN GREECE

The goal of the study was to map access to and satisfaction with health care services of people living with HIV in Greece.

We conducted an online survey with members of the HIV patient association “Thetiki Foni” to map barriers in access to care, including waiting times, distance from the point of care, cost of services and stigma.

Results

A report was created which highlighted the shortcomings in access to care due to geographic and financial disparities together with gaps in the organizational and operational effectiveness of the healthcare system.

The report was presented in a virtual conference with multi-stakeholder participation, organised by the HPI.

The percentage of HIV patients
Who reported that they have experienced delays in receiving test results for the management of the their condition
0%
The number of HIV patients
Who take viral load tests in private labs instead of public labs, covered by their health insurance
0%
Hope V Study: Assessment of Living Conditions and Access to Health Services for People who Live with Hepatitis C in Greece

PATIENT ACCESS EVALUATION STUDY WITH HEP C PATIENTS IN GREECE

The goal of the hope V study was to map living and access to care conditions of Hepatitis C patients underline barriers and challenges for reform.

We developed and validated a customized tool to assess barriers in access to care, according to a number of criteria such as: personal, financial and systemic.

Results

A series of scientific publications and conference presentations of survey outcomes in the area of hepatitis

Barriers to the access in medical care
The number of Hepatitis C patients who reported to experience barriers to accessing a doctor
0%
Not fulfilling the criteria
The number of Hepatitis C patients reported to experience barriers to therapy access because they are not perceived as fulfilling the criteria
0%
Barriers to therapy access in general
The number of Hepatitis C patients who reported to experience barriers to therapy access
0%
Failure to receive treatment
The number of Hepatitis C patients who say that the consequence of barriers to therapy is the delay or failure to receive treatment
0%
Investigating the role of psychiatrists and neurologists in the primary healthcare system in Greece

HEALTH POLICY PLANNING SURVEY TO EVALUATE A PROPOSED HEALTHCARE SYSTEM REFORM

The goal of the study was to understand challenges of the proposed primary health care reform in Greece and their impact on mental health care, from the perspective of both patients and physicians.

We conducted a survey via email with 174 psychiatrists and psychiatrist residents. The study was carried out between March and June 2015.

Results

Evidence were presented for the inclusion of mental health specialists and the integration of specialized care delivery into the proposed primary care reform

The percentage of respondents
Who think that public mental health services is inadequate
0%
The percentage of respondents
Who think that psychiatrist' participation in primary care will improve detection and management rates of people demonstrating mental health symptoms
0%